Thank you so much for your reply. I have been taking
300mg of COQ10 on and off...I am trying to figure out if it is making me feel weak.
I was in ICU last year for 5 days presenting with shortness of breath, edema in my ankles, and a cough. I thought I had Covid, which I did not. While in the ER, I was told I had afib, with a heart rate in excess of 190 bpm at times after the ER doc performed bedside ultrasound and told me matter of factly that I have heart failure with an ejection fraction of 25%. I was in that ER at 5:30 am on a Sunday morning by myself, I am recently divorced with no children and certainly did not understand what this doctor was telling me. I was panicking thinking I would die that morning and no one would know what happened to me. I also experienced an intermittent and undiagnosed condition which I finally uncovered online called Sudden Crisis Breathlessness which occurred each night as I was falling asleep in ICU. I had 3 more days of it upon release from the hospital and it finally resolved. It is a very unsettling feeling.
I felt awful upon release and was taking carvedilol, amiodarone, furosemide, and eliquis for a DVT. My main diagnosis was Acute Decompensated Heart Failure, Old Inferior Wall Myocardial Infarct, Acute Respiratory Failure and I also had atypical pneumonia, which I learned about after receiving my medical reports and which was never mentioned while I was in ICU. Upon release, I found it difficult to walk without severe dyspnea, my skin color was white, I was in bad shape for 3 days...then I turned a corner and started feeling better. I had difficulty getting an appointment with a cardiologist who was out until January of this year, and finally saw him at the end of that month. In the mean time a friend's husband who is a retired cardiologist read my medical report and my ekg tracings and said he sees no evidence of afib, nor of a previous large infarct. I stopped the amiodarone and eventually the furosemide. I just turned 55 and have done physical work as a builder of exterior structures, fences, pergolas, patio covers etc. so I was always in good shape. I am back to feeling as if I was never in ICU, I take 25 mg twice daily of carvedilol and 49/51mg twice daily of entresto, as well as myriad vitamin supplements. I have wondered if I might have had takutsobu cardiomyopathy (broken heart syndrome due to my divorce) but it seems doubtful as that condition usually resolves in a few weeks.
I had a stress echo done in March and completed the 12 minutes on the treadmill. My results were abnormal due to moderate global hypokinesis of LV contractility at rest and Dyskinesis at peak stress of anterior, lateral, septal, and inferior LV walls compatible with ischemia. My ejection fraction was measured at 35% up from 26% measured in the hospital with a nuclear Lexiscan.
I also had a DVT in my lower right leg and was taking 5mg eliquis twice daily but had ultrasound last month and it has disappeared so I am no longer taking eliquis. I should also point out that I had to keep asking my cardiologist to raise my dosage of carvedilol from 3.125 twice daily to 6.25 mg then to 12.5mg and finally to the 25mg twice daily I am now taking. I read several medical abstracts that indicated this dosage was most effective in preventing a cardiac death vs. lower dosage plus my resting heart rate was too high. I also had to ask several times to check the status of my DVT. My cardiologist is a wonderful man but he is just too busy so I have been diligent in my own care.
My biggest fear is that I will drop dead from sudden cardiac death. I have read hundred's of medical abstracts and that is how I finally found your book about Linus Pauling.
I sincerely appreciate your time and am happy to pay you for your expertise. I feel most comfortable when I can compensate a person for their time.
A Heartfelt thanks for what you have done to help so many people.
EDIT: I have noticed a slight improvement in my Raynaud's Syndrome since taking vitamin c. It seems to be connected to my other heart issues.
Last edited by deputydawg
on Sat Nov 20, 2021 8:58 pm, edited 1 time in total.