Dilated Cardiomyopathy + HFrEF

The discussion of the Linus Pauling vitamin C/lysine invention for chronic scurvy

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deputydawg
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Dilated Cardiomyopathy + HFrEF

Post Number:#1  Post by deputydawg » Sat Nov 20, 2021 10:27 am

Hi Owen,

Thank you so much for your reply. I have been taking
300mg of COQ10 on and off...I am trying to figure out if it is making me feel weak.

I was in ICU last year for 5 days presenting with shortness of breath, edema in my ankles, and a cough. I thought I had Covid, which I did not. While in the ER, I was told I had afib, with a heart rate in excess of 190 bpm at times after the ER doc performed bedside ultrasound and told me matter of factly that I have heart failure with an ejection fraction of 25%. I was in that ER at 5:30 am on a Sunday morning by myself, I am recently divorced with no children and certainly did not understand what this doctor was telling me. I was panicking thinking I would die that morning and no one would know what happened to me. I also experienced an intermittent and undiagnosed condition which I finally uncovered online called Sudden Crisis Breathlessness which occurred each night as I was falling asleep in ICU. I had 3 more days of it upon release from the hospital and it finally resolved. It is a very unsettling feeling.

I felt awful upon release and was taking carvedilol, amiodarone, furosemide, and eliquis for a DVT. My main diagnosis was Acute Decompensated Heart Failure, Old Inferior Wall Myocardial Infarct, Acute Respiratory Failure and I also had atypical pneumonia, which I learned about after receiving my medical reports and which was never mentioned while I was in ICU. Upon release, I found it difficult to walk without severe dyspnea, my skin color was white, I was in bad shape for 3 days...then I turned a corner and started feeling better. I had difficulty getting an appointment with a cardiologist who was out until January of this year, and finally saw him at the end of that month. In the mean time a friend's husband who is a retired cardiologist read my medical report and my ekg tracings and said he sees no evidence of afib, nor of a previous large infarct. I stopped the amiodarone and eventually the furosemide. I just turned 55 and have done physical work as a builder of exterior structures, fences, pergolas, patio covers etc. so I was always in good shape. I am back to feeling as if I was never in ICU, I take 25 mg twice daily of carvedilol and 49/51mg twice daily of entresto, as well as myriad vitamin supplements. I have wondered if I might have had takutsobu cardiomyopathy (broken heart syndrome due to my divorce) but it seems doubtful as that condition usually resolves in a few weeks.

I had a stress echo done in March and completed the 12 minutes on the treadmill. My results were abnormal due to moderate global hypokinesis of LV contractility at rest and Dyskinesis at peak stress of anterior, lateral, septal, and inferior LV walls compatible with ischemia. My ejection fraction was measured at 35% up from 26% measured in the hospital with a nuclear Lexiscan.

I also had a DVT in my lower right leg and was taking 5mg eliquis twice daily but had ultrasound last month and it has disappeared so I am no longer taking eliquis. I should also point out that I had to keep asking my cardiologist to raise my dosage of carvedilol from 3.125 twice daily to 6.25 mg then to 12.5mg and finally to the 25mg twice daily I am now taking. I read several medical abstracts that indicated this dosage was most effective in preventing a cardiac death vs. lower dosage plus my resting heart rate was too high. I also had to ask several times to check the status of my DVT. My cardiologist is a wonderful man but he is just too busy so I have been diligent in my own care.

My biggest fear is that I will drop dead from sudden cardiac death. I have read hundred's of medical abstracts and that is how I finally found your book about Linus Pauling.

I sincerely appreciate your time and am happy to pay you for your expertise. I feel most comfortable when I can compensate a person for their time.

A Heartfelt thanks for what you have done to help so many people.

EDIT: I have noticed a slight improvement in my Raynaud's Syndrome since taking vitamin c. It seems to be connected to my other heart issues.
Last edited by deputydawg on Sat Nov 20, 2021 8:58 pm, edited 1 time in total.

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Re: Dilated Cardiomyopathy + HFrEF

Post Number:#2  Post by deputydawg » Sat Nov 20, 2021 10:49 am

I might also add a peculiar hypothesis I have. Over the summer, while building outdoor structures, I found myself the object of affection by the fig beetle. If I was working with another person, the beetle only had interest in me. Just about everyday, a fig beetle would seek me out, hover, and land on me. This happened several times per day and I thought these big cumbersome beetles were just taking a rest.

After months of this happening, I decided to investigate a bit further. A few google searches revealed that the fig beetle is attracted to the gas from ripening fruit which is called ethylene. A bit more digging revealed that humans can emit ethylene gas from breath an it is an early marker of systemic inflammation. I then read a medical abstract: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5537290/

"Our results highlight that ethylene release is an early and integral component of in vivo lipid peroxidation with important clinical implications as a breath biomarker of bacterial infection."

Lipid peroxidation has been implicated in disease states such as atherosclerosis, IBD, ROP, BPD, asthma, Parkinson's disease, kidney damage, preeclampsia and others.

If my hypothesis is accurate, maybe fig beetles can detect atherosclerosis?

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Re: Dilated Cardiomyopathy + HFrEF

Post Number:#3  Post by ofonorow » Sun Nov 21, 2021 11:54 am

just a quick reply before I come back to study.... My initial reaction from your description was adrenal insufficiency... lack of cortisol...

I was in ICU last year for 5 days presenting with shortness of breath, edema in my ankles, and a cough


Back around 2011, I too wound up in intensive care for 30 days..Almost identical symptoms. Would up spending two stints of 15 day in Intensive Care, separated by about 30.. Each time 5 specialists had the opportunity to diagnose my adrenal issue, and none of them saw or thought about it... They chased what they felt must have been an infection... Perhaps because anyone with a similar issue would have died within 48 hours! So, they don't have experience...

Elsewhere I document the entire episode, but after major surgery in 2014 to implant a hernia mesh, and crashing and almost dying, they finally called in an endocrinologist who diagnosed me correctly as adrenal insufficient and I was given "stress steroids," immediately recovered and have been on hydrocortisone every since living a fairly normal life.

The book SAFE USES OF CORTISOL 3rd edition by William Mck Jefferies not only educated me, removed my fear of bioidentical (to cortisol) hydrocortisone, and how much I need to be taking, etc.

THE BIG PROBLEM IS THAT MOST REGULAR MD'S HAVE NO KNOWLEDGE OF HYDROCORTISONE, ARE TAUGHT ABOUT PREDNISONE (The artificial drug version) AND ARE TERRIFIED TO PRESCRIBE..

You mentioned you would obtain Jefferies book, and the next big challenge is finding an endrocrin or ND who would give you the proper prescription. More later
Owen R. Fonorow, Orthopath® (Orthomolecular Naturopath)
® is a trademark of the Institute for Orthomolecular Studies

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Re: Dilated Cardiomyopathy + HFrEF

Post Number:#4  Post by deputydawg » Sun Nov 21, 2021 12:32 pm

Are you thinking my enlarged heart and low ejection fraction are a result of adrenal insufficiency?

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Re: Dilated Cardiomyopathy + HFrEF

Post Number:#5  Post by deputydawg » Sun Nov 21, 2021 12:50 pm

I have not been covid vaccinated. I am concerned that the vaccination could be lethal with my heart condition and am probably more concerned about getting covid. I do not feel many symptoms of my heart failure with the exception of intermittent light headed/dizziness upon standing. I feel normal and can work long hours doing physically demanding work. Ive seen 2 unvaccinated neighbors wives get covid and their vaccinated husbands were fine. Do you have any thoughts on this?

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Re: Dilated Cardiomyopathy + HFrEF

Post Number:#6  Post by eDOC » Mon Nov 22, 2021 12:07 pm

The OP's symptoms can be alleviated, disease reversed using DMSO infusions along with some supplements.

Good luck.
eDOC!!
Rookie, rusty, sub average doc but one that gives results!

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Re: Dilated Cardiomyopathy + HFrEF

Post Number:#7  Post by deputydawg » Tue Nov 30, 2021 9:46 pm

Hi eDOC

Have you treated dilated cardiomyopathy with HFrEF previously? Would I need to have you administer the DMSO formula in your office, or is this something I can do myself with your guidance?

What area of medicine do you specialize in?

Thanks

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Re: Dilated Cardiomyopathy + HFrEF

Post Number:#8  Post by eDOC » Tue Nov 30, 2021 10:11 pm

deputydawg wrote:Hi eDOC

Have you treated dilated cardiomyopathy with HFrEF previously? Would I need to have you administer the DMSO formula in your office, or is this something I can do myself with your guidance?

What area of medicine do you specialize in?

Thanks



Hi deputydawg,

I think I answered to all the above, except maybe one.
You could administer oral, topical DMSO yourself, for an infusion would require my guidance once.

Have a great evening!
eDOC!!


EDIT:
PS: Sent you a PM, do check.
Rookie, rusty, sub average doc but one that gives results!

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Re: Dilated Cardiomyopathy + HFrEF

Post Number:#9  Post by ofonorow » Wed Dec 01, 2021 10:20 am

deputydawg wrote:Are you thinking my enlarged heart and low ejection fraction are a result of adrenal insufficiency?


Probably not, but that your symptoms match those of someone who has lost their ability to produce cortisol due to adrenal insufficiency. Symptoms not usually recognized by the medical profession, except a highly trained endocrinologist.

You have not mentioned what drugs you are on, but if you take cholesterol-lowering statins, those drugs would be "red flagged" as the most likely cause of cardiomyopathy. They lower CoQ10 levels.

And it is possible that low blood flow to the heart is making it enlarge and work harder. In that case, the basic Pauling vitamin C and lysine therapy, at the correct dosage, should correct the blood flow in approximately 10 days. If there are calcifications, then add vitamin K, and it might take months to restore the health of your coronary arteries.
Owen R. Fonorow, Orthopath® (Orthomolecular Naturopath)
® is a trademark of the Institute for Orthomolecular Studies


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